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  • Parent Autism Blog

  • Welcome to the parent autism blog at Autism Epicenter. This is an online journal written directly by parents of children with ASD. We'll share the triumphs and challenges as well as anything else that comes to our minds as related to Autistic Spectrum Disorder.

    Three parents post here:

    - Shane
    Autism Dad and the man behind Autism Epicenter. His son was born in 2002 and diagnosed in 2004 with classic autism.

    - Sherri
    Mother of "Sir Dantes". He was born in 2007 and diagnosed in 2009. "Ms. Maxie" is her typical daughter (doesn't have autism). Sherri works full time and blogs because she finds it to be therapeutic.

    - Karen
    Autism mom, founder of Successful Living with Autism through Training and Education (SLATE). Her daughter, Katie, was born in 1992 and diagnosed with autism in 1995.
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Comment from: Donna [Visitor]
I am working with several children with Autism and this would be a great app to use with them. I like the idea of using scences to connect language to a scene.
03/06/11 @ 20:20
Comment from: Mary Charleton [Visitor]
Scene Speak appears to be brilliant app. I'm looking for an app to set up Social Stories for my autistic son. Scene Speak can offer this and so much more. I love the fact that I would be able to load my own photos and sounds. Thank you for a fantastic app!
03/07/11 @ 02:15
Comment from: Lauren [Visitor] Email · http://www.saywhatspeech.com
I have so many students who are new to assistive technology devices but not pictures. They love interacting with the ipad and I think this would a perfect transition from a PECS like device to a higher level picture device. Most of them are able to recognize location and touch things they may be interested in this will only help in expanding their language and learning more about there concerns and interests in these areas.
03/07/11 @ 03:11
Comment from: Linda Rush [Visitor] · http://www.rush2knowledge.org
This is an awesome app for the special needs students that I teach. This non-profit school for mentally challenged have many students who are autistic or Downs. We have been looking for an app that we can add voice for communication. We use Boardmaker but would prefer apps that have real photos. I am very comfortable using photoshop elements on a pc and mac. I am presenting at the National CEC conference in April.
03/07/11 @ 05:02
Comment from: Carrie Tomlin [Visitor] Email
Hi. I have a 5 year old with severe "infantile" autism. He was diagnosised at age 2 and he is nonverbal. He hasn't made progress with speech until 5 months ago when I got the ipad. He can now answer yes and no, make choices from a choice board, and count.  He is trying so hard to talk, but the words just come out all scrambled and you can tell by looking at his face that he really thinks he is saying something comprehendable. He is even interested in learning how to spell and do puzzles on the ipad. He hates puzzles. He has made so much progress in the last 5 months, and this could definitely aid in it. He currently has no way of telling me that anything hurts, and I saw the example on this app with the different body parts and the yes and no button and I think he woulld catch on to that very well. I am a single mom of him and his 15 month old sister and I homeschool.  He has to have assited technology to learn. I have given up my career and my home to devote all my time to them.  Their father is currently behind on his child support and I am struggling to get gas in the car for therapies. I also just found out that my son needs glasses, and vision therapy is also recommended, which of course is not covered by insurance. My little guy is very sweet and stubborn, but is capable of so much more than he is given credit for.  He  is the hardest working 5 year old I know. The ipad is giving more to his life than I could have ever imagined and would love the opportunity to expand it with Scene Speak. I also have an awesome team of therapists starting to use his iPad with him and they love it. Thank you so much for what you do and the consideration. Any communication help he can get alleviates so much frustration for him and makes it easier for him to learn.
03/10/11 @ 05:09
Comment from: Marcia Dwyer [Visitor]
I have a 15 year-old child with Fragile X Syndrome who is non-verbal but has learned to communicate with us through pictures and gestures. He is pretty smart but gets increasingly frustrated when he cannot communicate his wants and needs. We have been trying for 7 years to get a communication device through Medicaid, but have run into several walls and hoops. We finally learned about the success people were having with the ipad and decided to go that route. After saving for one for the past 10 months, we were finally able to purchase one this past week! We are now in the process of finding apps that will allow our son to communicate his thoughts and increase his learning. Some we are able to get now, others will have to wait until we save up again. Scene Speak sounds like a perfect way to give my son a voice, not only at home, but in the real world. Thank you for developing this app and thinking outside the box for our kids.
03/12/11 @ 14:14
Comment from: Laura [Visitor]
Working with children with limited verbal skills and also having Autism is a challenging field. Research supports these students learn while looking at screens because of the borders. This app paired on an iPad definitely is a step in that direction. However, it is a challenge finding programs that interest children in an educational manner and foster interaction. This app appears to provide this criteria. Another wonderful feature of this app is that vocabulary is categorized visually. Children need to learn vocabulary words according to groupings. It fosters vocabulary to expand quickly while teaching them to "file" it in their brains. As with any approach with a child, no matter the disability, an educator needs many tools to keep the therapy fresh. This app would be a wonderful educational tool to help many students in many ways.
03/16/11 @ 19:33
Comment from: Susan [Visitor]
A parent shared this website with me, and I can’t not say enough about your site. It is very user friendly and provides viewers with a wealth of knowledge. The review of Scene Speak is a perfect example. I am a new iPad user and am learning about the various apps available. The amounts of apps can be overwhelming, and I truly appreciate you taking the time to review them. Scene Speak caught my attention because I am an SLP and work with students frequently setting up social stories and providing students with opportunities to experiment with various environments. Scene Speak speaks to the needs of my caseload, and I am very excited to utilize the app in my therapy setting and hopefully recommend it to parents. Thanks for your innovative and useful website. Our district has a speech and language page on our website and I hope to add your website link to the page. It is a resource ALL parents should view.
03/21/11 @ 16:38
Comment from: Carla Oldham [Visitor]
I have two roles: 1st and foremost I am the parent of a child with autism. He is limited verbal but really struggles to get what he want said out. In review of this program, I think it would be a great advantage for him to utilize it out in the community and at home. The options to customize, use our own pictures and sounds make this program limitless in what my brain is already hoping to creat for him. I see this supporting so many areas of his life. I am also an Autism Consultant and work with many families I would share and use this with. I do trainings for parent and educators on using the IPad for home,school and community and would also love to share this as a wonderful option in supporting and helping our special kids!
03/24/11 @ 15:53
Comment from: Shane [Member] Email
I want to thank all of you who showed interest in Scene Speak. Trust me, it's a great app!

The winners are now published on our Facebook page, so go see!

In the blog post I said, "The more details the better your chance of getting Scene Speak." Some of you didn't give me many details. But don't worry - I'll be giving away more apps in the coming months! Be ready with details!
03/25/11 @ 09:34
Comment from: Counsellor Vancouver [Visitor] · http://www.concordiacounselling.ca
Childhood and adolescence are both times of tremendous growth and change. Sometimes young people can benefit from having a space outside of home and school to safely express themselves and receive additional support and guidance. This app is a great way using technology for therapy. Thank you for sharing this information, I will be passing it on.
07/08/11 @ 11:22

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