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  • Parent Autism Blog

  • Welcome to the parent autism blog at Autism Epicenter. This is an online journal written directly by parents of children with ASD. We'll share the triumphs and challenges as well as anything else that comes to our minds as related to Autistic Spectrum Disorder.

    Three parents post here:

    - Shane
    Autism Dad and the man behind Autism Epicenter. His son was born in 2002 and diagnosed in 2004 with classic autism.

    - Sherri
    Mother of "Sir Dantes". He was born in 2007 and diagnosed in 2009. "Ms. Maxie" is her typical daughter (doesn't have autism). Sherri works full time and blogs because she finds it to be therapeutic.

    - Karen
    Autism mom, founder of Successful Living with Autism through Training and Education (SLATE). Her daughter, Katie, was born in 1992 and diagnosed with autism in 1995.
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Comment from: Julie Reilly [Visitor] Email
Our son is now 4 1/2 years old. He was always a good sleeper until about 3 1/2 when things changed. He had a much harder time settling down to sleep and also started waking up in the middle of the night for 2 hours or so - wide awake for no apparent reason. After about 2 weeks of this, we were getting really exhausted and worn out so we called the pediatrician and she suggested melatonin. It was a God send for us. We still have occasional cycles of night time awakenings but these are rare and my son has shown no ill effects from the melatonin. There was recently a medical journal article published in Jan 2012 which I looked up and read - it supports the use of melatonin for ASD kids for insomnia. I have pasted a summary below, "Vanderbilt researchers are studying how the supplement melatonin can ease the sleep difficulties that often afflict children with autism spectrum disorders. (iStock) A new Vanderbilt study shows that the over-the-counter supplement melatonin is promising in helping children with autism spectrum disorders (ASD), and their families, sleep better. Beth Malow, M.D., M.S. The study, published in the Journal of Autism and Developmental Disorders, contributes to the growing literature on supplemental melatonin for insomnia in ASD, according to lead author Beth Malow, M.D., M.S., professor of Neurology and Pediatrics, Burry Chair in Cognitive Childhood Development and Vanderbilt Kennedy Center investigator. Malow said the study was designed to allow researchers to identify doses at which children responded to melatonin and also how long it took to observe a response. Sleep difficulties, particularly insomnia, occur in 50 percent to 80 percent of children with ASD and are often accompanied by child and family distress. “We are excited about the potential melatonin has for treating insomnia, which can be overwhelming to children with autism as well as their families“We are excited about the potential melatonin has for treating insomnia, which can be overwhelming to children with autism as well as their families,” Malow said. “The next step is to perform large-scale, controlled trials to prove that melatonin is effective in this population.” Malow and colleagues recruited children ages 3-9 years with a clinical diagnosis of an ASD whose parents reported sleep onset delay of 30 minutes or longer on three or more nights per week. Supplemental melatonin, given 30 minutes before bedtime, improved sleep latency in most children at 1 mg or 3 mg dosages. Sleep latency, or the amount of time it takes a child to fall asleep, was measured by using an actigraph, which is a wrist-watch-like sensor worn by participants to monitor human rest/activity cycles. Melatonin was effective in the first week of treatment, maintained effectiveness over several months, was well-tolerated and safe, and showed improvement in sleep, behavior and parenting stress, Malow said. “While supplemental melatonin has shown promise in treating insomnia in our work and those of others, it is important that individuals with insomnia seek medical advice before taking melatonin,” Malow said. “This is because other treatable medical and sleep conditions can sometimes cause insomnia. Also, melatonin can interact with other drugs for other medical conditions,” she added. The study was supported with funding from the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) and Autism Speaks. The actual journal article can be found at this link. http://www.ncbi.nlm.nih.gov/pubmed/22160300 good luck, Julie Reilly
01/18/12 @ 06:01
Comment from: Sherri [Member] Email
hi julie, and thank you for your informative comment. this is a subject i am very interested in and any and all information is appreciated. i find the results very encouraging. vanderbilt university is where we took sir dantes for his prognosis and diagnosis; and our pediatrician works out of vanderbilt. we trust their research and staff very much.

sir dantes and ms. maxie have their annual well-baby checkup in a couple of months and i plan on bringing this subject up. i suppose that if a child did suffer any ill side effects from this medication, or any other medication, you do have the choice to end it.

i have spoken with many parents would use, or have tried, a variety of medications. some praise the effects and others curse them. i guess it all depends on your personal situation and how well your child tolerates what is being given to them. again, thank you julie and i will keep everyone posted on his progress.
01/18/12 @ 15:58
Comment from: Karla [Visitor]
maybe he is dealing with sensory issues. My son had a horrible time going to sleep...we finally (after many many nights of war) put a cd player with piano music and he goest to sleep...however, the music needs to stay on all night or he will wake up inmediately! now it seems he needs more weight on him (he is putting lots of pillows and stuff around him) so we are thinking on getting him a weighted blanket...because he is waking up asking daddy to go to his bed (daddy is big and he loves to feel his weight...that's how we figured he needed to feel more weight). Anyways, you might want to try and see if he is dealing with sensory problems...try music, or lights or complete dark...see what works for you and for him.
01/23/12 @ 13:13
Comment from: Sherri [Member] Email
you definitely have a point karla. his bedroom is right off of the kitchen and up until lately we left the florescent light on over the sink at night. we have wondered if that light has become to harsh for him. so now we are leaving the low light over the dining room table on instead. he's has also left his mario karts on. i turn it off after he's asleep. so, we may be dealing with some changes in the sensory issues.
01/23/12 @ 17:41
Comment from: Sherri [Member] Email
check out our fb page to keep up with sir dantes sleep, or lack of...
02/03/12 @ 18:27

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